Acute Allergy Registry
About the NACE Acute Allergy Registry
The National Allergy Centre of Excellence (NACE) – Australia’s peak allergy research body – is piloting a purpose-built Acute Allergy Registry to help accelerate research into allergy prevention, treatment and management strategies.
The Registry will begin collecting real-time data on patients who present to the Royal Children’s Hospital and Royal Melbourne Hospital Emergency Departments (ED) with allergic reactions and anaphylaxis.
For more information, including Frequently Asked Questions, please read our patients and families information sheet.
What is the purpose of the Registry?
The Registry is designed to help improve the clinical management of patients who present to the ED with allergy and anaphylaxis. It will help researchers learn more about:
- Who accesses acute emergency care and why, including common triggers for allergic reactions
- How allergic reactions are treated and managed in emergency departments
- Factors that predict patient outcomes
- What new tools might help improve emergency allergy care
- Whether a standardised discharge package can help minimise future reactions
- How we can ensure ED allergy care is best practice.
Information for participants
Who is eligible?
Children and adults who present to the ED with an acute allergic reaction to an identified drug, food or insect allergen, or those who receive a final diagnosis of anaphylaxis.
Who is not eligible?
ED patients presenting with a suspected allergic reaction who do not have an identified allergen exposure episode.
What information is collected?
During and after your hospital visit, you and your doctor will be asked questions about:
- Personal details like name, age, address and contact information
- Your ED visit e.g. symptoms, medications and treatment
- Any other illnesses or medications taken e.g. asthma and Ventolin
The outcome of your visit e.g. did you get admitted to hospital? Were you referred to an Allergist? Did you receive an adrenaline autoinjector script (EpiPen® or Anapen®)?
Who has access to my information?
Authorised personnel from the NACE team will have access to the information securely transferred from your Electronic Medical Record to the Registry.
Researchers must apply to access Registry data for ethically approved projects about allergic disease.
Registry data provided to approved researchers, such as allergy symptoms and care, will not include any personal identifying information, such as your name and date of birth. Your data will never be sold to a third party.