Consumers
Setting the benchmark for consumer involvement in allergy research
More than five million Australians are living with allergic disease, and the NACE is committed to ensuring their voice is truely embedded in allergy research.
The NACE provides opportunities for people living with, or caring for someone with, allergies to share their lived experiences with drug, food, insect and respiratory allergy experts and help shape research design, implementation and translation.
Members of the NACE Consumer Advisory Group and Consumer Engagement Register have provided valuable input into more than 30 research projects, so far, including:
- Feedback on research project design
- Review of research materials (e.g. Participant Information Consent Forms or brochures)
- Involvement in focus groups
- Advice on communicating research findings
- Participation in media activity to help raise awareness of Australian allergy research.
The next step is to support consumers to become investigators or consumer research partners in key NACE projects.
To find out more, email [email protected] or phone 03 9936 6752.
Meet our Consumer Advisory Group
The Group includes representatives from rural, urban, culturally and linguistically diverse backgrounds – with their consumer voice embedded in all NACE projects and activities.
Join our Consumer Engagement Register
If you are 18+ and impacted by allergies, join our Consumer Engagement Register and share your lived experiences with Australian allergy researchers.
Researchers - embed lived experience in your research
The NACE pairs allergy researchers and experts with people who have lived experience. Make sure the consumer voice is part of your next project or grant.
Meet Kylie
Associate Professor Kylie Gwynne, NACE Consumer Advisory Group Co-chair
From: New South Wales
Profession: Academic
“My son and I both have anaphylaxis, eczema, asthma and allergic rhinitis. My son also has mast cell activation syndrome (MCAS) and eosinophilic oesophagitis (EoE). The NACE Consumer Advisory Group helps inform research so that the issues that matter most to people with allergies are being investigated.”
Meet Lisa
Lisa Gamble, NACE Consumer Advisory Group Co-chair
From: South Australia
Profession: Lawyer and consultant
“I have respiratory and drug allergies and I’m undertaking immunotherapy to improve my allergic rhinitis. My son and husband also have multiple allergies so our family is impacted daily by these diseases – I have many lived experiences I can share to help inform allergy research.”
Kylie's story
Eleanor and Mae's story
Micaela's story
In proud partnership with
